You have found the
The Chronicles of Ben Blog Archive
May 2011 - December 2015
The Chronicles Of Ben Blog is now
The Chronicles of Ben Royko - Severe Autism in Real Time
Click on the link and we'll see you there!
And here's the archive:
THE CHRONICLES OF BEN Blog
is all about Ben Royko, his family and Ben's life with severe autism. It's mainly written by me, Ben's dad, Dave Royko.
Beginning October 2015, most of my posts will be published simultaneously on this blog and the Huffington Post blog.
Click HERE for Ben Stories, including information about the eBook,
The Chronicles of Ben - Adventures in Autism
Prior to moving to this blog format,
earlier Ben Updates can be found:
HERE for Ben's arrival and first month at Monarch (May, 2011);
HERE for Ben's First Year at Monarch Updates;
HERE for Ben's Second Year At Monarch Updates;
HERE for Ben's Third Year at Monarch Updates (prior to 10/15/13).
Click HERE for Ben's gallery of pics from Cleveland.
Updates beginning October 15, 2013 are below, the most recent at the top.
And thanks for checking up on our big Benny boy!
The Ben Royko family
|Posted on December 29, 2015 at 4:20 PM||comments (20)|
|Posted on December 18, 2015 at 11:00 AM||comments (1)|
|Posted on December 16, 2015 at 12:35 AM||comments (0)|
The whiteboard (inserted upper right) lays out the terms in Ben's house, at least for Ben:
"1: Hang Two Ornaments on Christmas Tree, then, 2: Get a Cookie." Talk about incentive.
The day I realized Ben was autistic, we sat on the floor as he stared up with a wide smile at the spinning ceiling fan....Read Full Post »
|Posted on December 8, 2015 at 10:25 AM||comments (0)|
Michelle helps Ben bake cookies as he demonstrates a degree of delayed gratification we never could have imagined! Thanks to Ben's house for the pic. And notice, as with every picture ever taken of Ben, one hand is holding a book (and probably not a cookbook). Ben owns many books, and he is constantly swapping them out and he always seems to have a speci...Read Full Post »
|Posted on November 15, 2015 at 8:55 AM||comments (0)|
Not that anybody needs any personalization to reel at the horror of the Paris insanity, but I just read that attackers targeted the disabilities section at the rock concert, blasting away at people in wheelchairs. If Ben had been there, that would have been his section. Ben's twin brother, Jake, is a long-time death metal lover and concert-goer, and if he had happened to be in Paris, there is a great chance he would have been at the event. I am trying to shake images from my mi...Read Full Post »
|Posted on November 10, 2015 at 4:40 PM||comments (0)|
|Posted on November 5, 2015 at 12:10 AM||comments (1)|
|Posted on October 16, 2015 at 11:20 AM||comments (0)|
|Posted on October 7, 2015 at 2:45 PM||comments (1)|
I'm happy to be, as of today, one of Huffington Post's bloggers, starting with my response to John Robison. Now I'm even harder to avoid!
|Posted on September 30, 2015 at 3:20 PM||comments (0)|
September 30, 2015
In response to John Robison, Psychology Today, “Does Neurodiversity Whitewash Autism?” (Sep 29, 2015)
As the old saw goes: Write what you know.
John Elder Robison does th...
|Posted on September 28, 2015 at 10:05 AM||comments (0)|
MedWish International is an exceptional Cleveland-based non-profit dedicated to retrieving, recycling and reusing medical supplies (and what better city for that?) for countries that desperately need them. Monarch Center for Autism and MedWish work together (as MedWish does with a number of organizations) to provide vocational experience for Monarch deniz...Read Full Post »
|Posted on September 7, 2015 at 9:00 AM||comments (0)|
The plan was, yesterday, Ben heads from Cleveland back to Chicago to see family that he hasn't seen for three years, we spend the night in a hotel, and come back to Cleveland today. (We are STILL in the process of working out Ben's adult services residential situation, but can't really talk, er, write about any of it yet.) Ah, autism! Soon after seeing everybody, Ben was ready to get back in the car and come back to Cleveland. It was becoming clear that it could get bad. So, ti...Read Full Post »
|Posted on August 17, 2015 at 1:35 PM||comments (2)|
FINALLY FINALLY FINALLY, some substantial information/research insight into the nightmare of sleep(lessness) and autism. It's a start. Sleep problems are one of those parts of family life with autism that many parents will tell you is one of the most nightmarish (no pun intended) aspects. Karen went almost 13 years without one - literally, not ONE - solid night of sleep that added up to more than 5 hours (at most, usually less) and even those few hours were interrupted. Sleep d...Read Full Post »
|Posted on August 17, 2015 at 11:10 AM||comments (0)|
A thousand "thanks" to Sarah in Ben's cottage for this one, of Ben surveying his Duplos last week. Has there ever been a cuter smile?
|Posted on August 11, 2015 at 10:10 AM||comments (0)|
A bit over four years ago, knowing we were about to start driving between Chicago and Cleveland a couple of times each month, we traded in our old Hyundai for a new Hyundai. It served us well, and last night, we traded in our (now) old Hyundai for another new Hyundai.
We don’t get attached to cars. In fact, since we usually hold onto our horseless carriages until they’ve de-evolved into trembling metal melanges awaiting a merciful junk-yard afterlife, we...
|Posted on August 10, 2015 at 1:15 PM||comments (0)|
Starbucks people are just trying to be friendly, I know that.
Even for a Monday morning, I was feeling more tired than usual. The chirpy barista clearly wasn’t.
I hate it when strangers behind counters ask me unnecessary questions.
“Are you a guitar player? Are those from playing guitar?” She was asking about the bandages on three of my right-hand fingers.
I’ve gotten used to giving meaningless little generic answers t...
|Posted on August 3, 2015 at 8:40 PM||comments (0)|
We're still some weeks away from Ben's adult placement situation being finalized (and my being able to write about it). For now, he is still in his Monarch cottage in Cleveland on a limited, temporary basis.
But in the mean time...
Ben isn't non-verbal, but functionally, he is minimally verbal. He can make simple requests or express something in a few words, almost never a complete sentence.
But for a ...Read Full Post »
|Posted on July 30, 2015 at 9:15 AM||comments (0)|
Happy 22nd Birthday Boys! Ben remains in Ohio while we continue to work on the rest of his life. Nothing to report yet, but we're busy.
July 29, 2015 - The sun sets on Jake's and Ben's 21st year at a rest stop as Karen and I head to Ohio on 80/90 for Ben's Cleveland celebration tomorrow.
Read Full Post »
|Posted on July 22, 2015 at 10:45 AM||comments (0)|
Today, Ben begins his final week of being 21. All the effort and action so far has lead to nothing yet decided, nothing known. It feels like mountain climbing in the middle of an avalanche.
|Posted on July 10, 2015 at 9:35 PM||comments (0)|
At this moment, Monarch, Ben's home for the last 4 years, truly seems like heaven to me. And being here, watching Ben lope around his cottage in confident, comfortable happiness, surrounded by his surrogate - and wonderful - Ohio family, on our last visit (next time we are here it will be to bring him back to Illinois), feels like a living hell. No words.
Read Full Post »